The results of the CIHR-funded pilot and full research evaluation of the Compassionate Care Benefit (CCB) overwhelmingly point to the need to first mobilize knowledge about the CCB, as surprisingly few Canadians are not aware of the CCB, nor do they know the details around how to apply. This is particularly the case for three key stakeholder groups involved in the CCB evaluative research: (1) informal caregivers, (2) front-line palliative care providers, and (3) employers/HR personnel.
The purpose of this project is to create appropriate and effective English and French language knowledge translation (KT) tools that are sex and gender neutral, while implementing a focused strategy for the dissemination of these tools in order that they are fully mobilized by employers/human resources personnel. The results of this work will translate into employers/human resources personnel across Canada becoming knowledgeable about the CCB, enabling them to facilitate the use of the CCB by caregiver-employees (CEs).
Two sets of knowledge translation (KT) tools have been created and distributed: one set for nurses/physicians working across a range of palliative care settings, and a second set for human resource (HR) professionals and employers. These tools include: bookmarks, pamphlets, posters, magnets, PPT presentations, Precis presentations, and video/story-boarding. A multi-pronged strategy was used for disseminating the tools to the targeted audiences concerned, including on-line ordering, and distribution via conference registration bags.
A. Williams, J. Eby, V.A. Crooks, K. Stajduhar, M. Giesbrecht, M. Vuksan, R. Cohen, K.Brazil, D. Allan. 2011. “Canada’s Compassionate Care Benefit: Is it an adequate public health Response to addressing the issue of caregiver burden in end-of-life care?” BMC Public Health (Impact Factor 1.997), 11: 335.
S. Dykeman, A. Williams. 2014. “Agenda-setting for Canadian caregivers: using media analysis of the maternity leave benefit to inform the Compassionate Care Benefit”. BMC Women’s Health (Impact Factor 1.66), 14(60): 1-13. DOI: 10.1186/1472-6874-14-60
M. Giesbrecht, V.A. Crooks, A. Williams, O. Hankivsky. 2012. “Critically examining diversity in end-of-life family caregiving: implications for equitable caregiver support and Canada’s Compassionate Care Benefit.” International Journal for Equity in Health (Impact Factor 1.71), 11(65), 1-13.
S. Dykeman, A. Williams. 2013. “The Importance of Place and Time in Translating Knowledge about Canada’s Compassionate Care Benefit to Informal Caregivers.” Journal of Social Work in End-of-Life and Palliative Care. 9(4): 289-307.
M. Vuksan, A. Williams, V. Crooks. 2012. “Family Friendly Policies: Accommodating End-of-Life Caregivers in the Workplace.” International Journal of Workplace Health Management, 5(1), 4-14.
M. Vuksan, A. Williams, V. Crooks. 2012. “The Workplace perspective on supporting family caregivers at end-of-life: Evaluation a new Canadian social program.” Community Work and Family, 15(3), 317-333.
A. Williams. 2018. “Education, Training, and Mentorship of Caregivers of Canadians Experiencing a Life-Limiting Illness”. Journal of Palliative Medicine, 21(S1): S-45-S-49. doi: https://doi.org/10.1089/jpm.2017.0393.
A. Williams. 2013. “Caregiver-Friendly Workplace Policies: Examining Canada’s Compassionate Care Benefit”. British Sociological Association: Work, Employment and Society 2013 Conference. Warwick, United Kingdom
A. Williams, J. Eby, V. Crooks, K. Stajduhar, M. Geisbrecht, M. Vuksan, R. Cohen, K. Brazil. 2013. “Canada’s Compassionate Care Benefit: Is it an Adequate Public Health Response to Addressing the Issue of Caregiver Burden in End-of-Life Care?” Gerontological Society of America Annual Scientific Meeting. New Orleans, Louisiana.
A. Williams, S. Baxter, V. Crooks, M. Giesbrecht, K. Stajduhar, S.R. Cohen, K. Loi, V. Sherry. 2012. “Knowledge Mobilization of Canada’s Compassionate Care Benefit: Physicians and Registered Nurses as Mobilizers.” International Congress on Palliative Care, Montreal, QC.
K. Loi, A. Williams. 2012. “Knowledge Mobilization of Canada’s Compassionate Care Benefit among Physicians and Nurses.” Annual Hospice Palliative Care Ontario Conference. Toronto, ON.
A. Williams, J. Eby, V. Crooks, K. Stajduhar, M. Giesbrecht, M. Vuksan, R. Cohen, K. Brazil, D. Allan. 2011. “Canada’s Compassionate Care Benefit: Is it an adequate public health response to addressing the issue of caregiver burden in end-of-life care?” Festival of International Conferences on Caregiving, Disability, Aging and Technology (FIDDCAT). Sheraton Centre Toronto Hotel: Toronto, Canada.
- Global Toronto News
Compassionate Care in Canada: A Global National Three Part Series: http://globalnews.ca/news/216600/compassionate-care-in-canada/
Knowledge translation (KT) tools and the results of the study can be located at: http://www.mcmaster.ca/mieh/research/CCB.html